H\u00e0nh tr\u00ecnh \u0111au l\u00f2ng c\u1ee7a m\u1ed9t c\u00f4 g\u00e1i 23 tu\u1ed5i sau khi \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc c\u0103n b\u1ec7nh nan y hi\u1ebfm g\u1eb7p \u0111\u00e3 thu h\u00fat s\u1ef1 quan t\u00e2m c\u1ee7a r\u1ea5t nhi\u1ec1u ng\u01b0\u1eddi tr\u00ean kh\u1eafp th\u1ebf gi\u1edbi.<\/p>\n
Amanda Tam, s\u1ed1ng t\u1ea1i Montreal, Canada, \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc c\u0103n b\u1ec7nh nan y hi\u1ebfm g\u1eb7p l\u00e0 b\u1ec7nh x\u01a1 c\u1ee9ng teo c\u01a1 m\u1ed9t b\u00ean (Amyotrophic Lateral Sclerosis \u2013 ALS) v\u00e0o Th\u00e1ng M\u01b0\u1eddi n\u0103m 2021, ch\u1ec9 5 ng\u00e0y tr\u01b0\u1edbc sinh nh\u1eadt l\u1ea7n th\u1ee9 21.<\/p>\n
Tam, t\u1ed1t nghi\u1ec7p McGill University t\u1ea1i th\u00e0nh ph\u1ed1 n\u00e0y v\u00e0o n\u0103m 2023 v\u1edbi b\u1eb1ng t\u00e2m l\u00fd h\u1ecdc v\u00e0 ti\u1ebfp th\u1ecb, b\u1eaft \u0111\u1ea7u nh\u1eadn th\u1ea5y c\u00e1c tri\u1ec7u ch\u1ee9ng v\u00e0o Th\u00e1ng Gi\u00eang n\u0103m 2021. Hi\u1ec7n Tam \u0111ang s\u1eed d\u1ee5ng m\u1ea1ng x\u00e3 h\u1ed9i, v\u1edbi t\u00ean t\u00e0i kho\u1ea3n @amandatam00, \u0111\u1ec3 n\u00e2ng cao nh\u1eadn th\u1ee9c v\u00e0 chia s\u1ebb c\u00e2u chuy\u1ec7n c\u1ee7a m\u00ecnh v\u1edbi th\u1ebf gi\u1edbi. Nh\u1eefng ng\u01b0\u1eddi theo d\u00f5i x\u00fac \u0111\u1ed9ng \u0111ang t\u1eadp h\u1ee3p l\u1ea1i ph\u00eda sau Tam \u0111\u1ec3 \u1ee7ng h\u1ed9 c\u00f4 trong s\u1ee9 m\u1ec7nh l\u00ean ti\u1ebfng v\u1ec1 c\u0103n b\u1ec7nh t\u00e0n kh\u1ed1c n\u00e0y v\u00e0 t\u1eadn h\u01b0\u1edfng qu\u00e3ng th\u1eddi gian c\u00f2n l\u1ea1i c\u1ee7a m\u00ecnh.<\/p>\n
Tam chia s\u1ebb v\u1edbi Newsweek qua email: \u201cM\u1eb7c d\u00f9 t\u00f4i m\u1eafc m\u1ed9t c\u0103n b\u1ec7nh nan y, t\u00f4i v\u1eabn quy\u1ebft t\u00e2m s\u1ed1ng cu\u1ed9c s\u1ed1ng t\u1ed1t nh\u1ea5t c\u1ee7a m\u00ecnh trong khi n\u00e2ng cao nh\u1eadn th\u1ee9c v\u1ec1 m\u1ed9t c\u0103n b\u1ec7nh hi\u1ebfm g\u1eb7p nh\u01b0ng l\u1ea1i nguy hi\u1ec3m \u0111\u1ebfn t\u00ednh m\u1ea1ng nh\u01b0 v\u1eady. T\u00f4i l\u00e0 ng\u01b0\u1eddi th\u1ef1c t\u1ebf, v\u00e0 t\u00f4i ngh\u0129, v\u00ec t\u00e2m l\u00fd \u0111\u00f3, t\u00f4i c\u00f3 th\u1ec3 ch\u1ea5p nh\u1eadn ch\u1ea9n \u0111o\u00e1n c\u1ee7a m\u00ecnh d\u1ec5 d\u00e0ng h\u01a1n nh\u1eefng ng\u01b0\u1eddi xung quanh. T\u00f4i bi\u1ebft tr\u01b0\u1edbc khi \u0111i kh\u00e1m r\u1eb1ng b\u00e1c s\u0129 th\u1ea7n kinh s\u1ebd ch\u1ea9n \u0111o\u00e1n t\u00f4i m\u1eafc ALS, v\u00e0 v\u00ec th\u1ebf, t\u00f4i kh\u00f4ng h\u1ec1 b\u1ecb s\u1ed1c hay ph\u1ee7 nh\u1eadn. Th\u1eadt kh\u00f4ng \u0111\u00fang\u00a0n\u1ebfu gi\u1eef tinh th\u1ea7n l\u1ea1c quan khi \u0111\u1ebfn kh\u00e1m v\u00ec t\u00f4i bi\u1ebft c\u00f3 \u0111i\u1ec1u g\u00ec \u0111\u00f3 kh\u00f4ng \u1ed5n r\u1ed3i.\u201d<\/p>\n
ALS, c\u00f2n \u0111\u01b0\u1ee3c g\u1ecdi l\u00e0 b\u1ec7nh Lou Gehrig, m\u1ed9t b\u1ec7nh v\u1ec1 h\u1ec7 th\u1ea7n kinh ti\u1ebfn tri\u1ec3n \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn c\u00e1c t\u1ebf b\u00e0o th\u1ea7n kinh trong n\u00e3o v\u00e0 t\u1ee7y s\u1ed1ng, d\u1eabn \u0111\u1ebfn m\u1ea5t ki\u1ec3m so\u00e1t c\u01a1. R\u1ed1i lo\u1ea1n th\u1ea7n kinh hi\u1ebfm g\u1eb7p n\u00e0y, \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn kho\u1ea3ng 30,000 ng\u01b0\u1eddi \u1edf Hoa K\u1ef3 v\u00e0 c\u00f3 kh\u1ea3 n\u0103ng di truy\u1ec1n trong gia \u0111\u00ecnh, nh\u01b0ng h\u1ea7u h\u1ebft c\u00e1c tr\u01b0\u1eddng h\u1ee3p kh\u00f4ng c\u00f3 m\u1ed1i li\u00ean h\u1ec7 gia \u0111\u00ecnh n\u00e0o v\u1edbi c\u0103n b\u1ec7nh n\u00e0y.<\/p>\n
Sau khi v\u1eadt l\u1ed9n v\u1edbi c\u00e1c tri\u1ec7u ch\u1ee9ng trong b\u1ea3y th\u00e1ng, Tam quy\u1ebft \u0111\u1ecbnh t\u00ecm ki\u1ebfm l\u1eddi khuy\u00ean y t\u1ebf v\u00e0o Th\u00e1ng B\u1ea3y n\u0103m 2021. Trong khi h\u00e0nh tr\u00ecnh \u0111\u1ec3 c\u00f3 \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n ch\u00ednh th\u1ee9c c\u00f3 th\u1ec3 m\u1ea5t nhi\u1ec1u th\u1eddi gian \u0111\u1ed1i v\u1edbi nhi\u1ec1u ng\u01b0\u1eddi b\u1ecb nghi ng\u1edd m\u1eafc ALS, Tam cho bi\u1ebft qu\u00e1 tr\u00ecnh ch\u1ea9n \u0111o\u00e1n c\u1ee7a c\u00f4 di\u1ec5n ra h\u1ebft s\u1ee9c nhanh ch\u00f3ng.<\/p>\n
\u201cM\u1ed9t s\u1ed1 ng\u01b0\u1eddi ph\u1ea3i \u0111\u1ee3i nhi\u1ec1u n\u0103m \u0111\u1ec3 \u0111\u01b0\u1ee3c b\u00e1c s\u0129 kh\u00e1m, nh\u01b0ng b\u00e1c s\u0129 \u0111a khoa c\u1ee7a t\u00f4i bi\u1ebft ngay c\u00f3 \u0111i\u1ec1u g\u00ec \u0111\u00f3 kh\u00f4ng b\u00ecnh th\u01b0\u1eddng,\u201d\u00a0Tam k\u1ec3\u00a0l\u1ea1i. \u201cNgay ng\u00e0y h\u00f4m sau, t\u00f4i c\u00f3 m\u1ed9t cu\u1ed9c h\u1eb9n v\u1edbi b\u00e1c s\u0129 th\u1ea7n kinh.\u201d<\/p>\n
Sau nhi\u1ec1u l\u1ea7n ch\u1ee5p v\u00e0 x\u00e9t nghi\u1ec7m, bao g\u1ed3m ch\u1ee5p MRI n\u00e3o v\u00e0 c\u1ed9t s\u1ed1ng c\u1ed5, EMG v\u00e0 ch\u1ecdc d\u00f2 th\u1eaft l\u01b0ng, Tam \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc b\u1ec7nh ALS. Trong khi qu\u00e1 tr\u00ecnh ch\u1ea9n \u0111o\u00e1n di\u1ec5n ra nhanh ch\u00f3ng so v\u1edbi nhi\u1ec1u ng\u01b0\u1eddi ph\u1ea3i ch\u1edd \u0111\u1ee3i nhi\u1ec1u n\u0103m \u0111\u1ec3 \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n, th\u00ec tin t\u1ee9c n\u00e0y \u0111\u00e3 thay \u0111\u1ed5i cu\u1ed9c \u0111\u1eddi c\u00f4.<\/p>\n
Tam s\u1edbm chuy\u1ec3n s\u1ef1 t\u1eadp trung c\u1ee7a m\u00ecnh sang m\u1ea1ng x\u00e3 h\u1ed9i nh\u01b0 m\u1ed9t n\u1ec1n t\u1ea3ng \u0111\u1ec3 n\u00e2ng cao nh\u1eadn th\u1ee9c v\u00e0 \u0111\u1ed1i ph\u00f3 v\u1edbi t\u00ecnh tr\u1ea1ng c\u1ee7a b\u1ea3n th\u00e2n. L\u00e0 m\u1ed9t tr\u01b0\u1eddng h\u1ee3p ngo\u1ea1i l\u1ec7 c\u1ef1c \u0111oan, v\u1edbi nh\u1eefng ng\u01b0\u1eddi trung b\u00ecnh \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc b\u1ec7nh l\u00e0 nam gi\u1edbi v\u00e0 \u1edf \u0111\u1ed9 tu\u1ed5i 60, Tam mu\u1ed1n chia s\u1ebb r\u1eb1ng ALS kh\u00f4ng lo\u1ea1i tr\u1eeb ai.<\/p>\n
C\u00f4 hi\u1ec7n l\u00e0 ng\u01b0\u1eddi tr\u1ebb nh\u1ea5t t\u1eebng c\u00f3 t\u00ean trong c\u01a1 s\u1edf d\u1eef li\u1ec7u ALS QUEBEC. Video \u0111\u1ed9t ph\u00e1 c\u1ee7a c\u00f4, \u0111\u01b0\u1ee3c \u0111\u0103ng l\u00ean t\u00e0i kho\u1ea3n @amandatam00 TikTok v\u00e0o ng\u00e0y 24 Th\u00e1ng M\u01b0\u1eddi M\u1ed9t n\u0103m 2022, \u0111\u1ec1 c\u1eadp m\u1ed9t c\u00e1ch h\u00e0i h\u01b0\u1edbc \u0111\u1ebfn t\u00ecnh tr\u1ea1ng c\u1ee7a c\u00f4 v\u00e0 nhanh ch\u00f3ng thu h\u00fat h\u01a1n 3.2 tri\u1ec7u l\u01b0\u1ee3t xem.<\/p>\n
\u201cVideo l\u00e0 th\u1ee9 xu\u1ea5t hi\u1ec7n trong t\u00e2m tr\u00ed t\u00f4i khi \u0111ang truy\u1ec1n thu\u1ed1c t\u1ea1i b\u1ec7nh vi\u1ec7n,\u201d\u00a0Tam nh\u1edb l\u1ea1i. \u201cCh\u00fa th\u00edch tr\u00ean m\u00e0n h\u00ecnh ghi l\u00e0 \u2018b\u00e1c s\u0129 ngh\u0129 t\u00f4i s\u1ebd ph\u1ea3n \u1ee9ng nh\u01b0 th\u1ebf n\u00e0o khi c\u00f4 \u1ea5y n\u00f3i v\u1edbi t\u00f4i r\u1eb1ng t\u00f4i s\u1eafp qua \u0111\u1eddi nh\u01b0ng t\u00f4i v\u1eabn ph\u1ea3i t\u00ecm vi\u1ec7c l\u00e0m v\u00e0 tr\u1edf th\u00e0nh ng\u01b0\u1eddi l\u1edbn\u2019, trong khi t\u00f4i nh\u1ea3y theo b\u00e0i h\u00e1t \u2018My Happy Song\u2019 (B\u00e0i Nh\u1ea1c Y\u00eau Th\u00edch C\u1ee7a T\u00f4i).\u201d<\/p>\n
C\u00f4 hi\u1ec7n tr\u1edf n\u00ean n\u1ed5i ti\u1ebfng v\u00ec nh\u1eefng b\u00e0i \u0111\u0103ng h\u00e0i h\u01b0\u1edbc v\u00e0 ch\u00e2m bi\u1ebfm v\u1ec1 cu\u1ed9c s\u1ed1ng chung v\u1edbi ALS, thu h\u00fat s\u1ef1 ch\u00fa \u00fd \u0111\u1ebfn c\u0103n b\u1ec7nh n\u00e0y v\u00e0 truy\u1ec1n c\u1ea3m h\u1ee9ng cho nh\u1eefng ng\u01b0\u1eddi kh\u00e1c th\u00f4ng qua c\u00e1ch ti\u1ebfp c\u1eadn th\u1eb3ng th\u1eafn c\u1ee7a m\u00ecnh.<\/p>\n
S\u1ef1 h\u00e0i h\u01b0\u1edbc vui t\u01b0\u01a1i v\u00e0 m\u1ed9t\u00a0ch\u00fat \u0111en t\u1ed1i c\u1ee7a c\u00f4 \u0111\u00e3 \u0111\u01b0\u1ee3c nhi\u1ec1u ng\u01b0\u1eddi \u0111\u1ed3ng c\u1ea3m, v\u00e0 t\u00e0i kho\u1ea3n TikTok c\u1ee7a c\u00f4, th\u01b0\u1eddng xuy\u00ean s\u1eed d\u1ee5ng c\u00e1c meme th\u1ecbnh h\u00e0nh v\u00e0 di\u1ec5n ng\u00f4n c\u1ee7a Gen Z, \u0111\u00e3 tr\u1edf th\u00e0nh n\u01a1i c\u00f4 k\u1ebft n\u1ed1i v\u1edbi nh\u1eefng ng\u01b0\u1eddi kh\u00e1c b\u1ecb \u1ea3nh h\u01b0\u1edfng b\u1edfi t\u00ecnh tr\u1ea1ng hi\u1ebfm g\u1eb7p n\u00e0y.<\/p>\n
Tam cho bi\u1ebft: \u201cT\u00f4i r\u1ea5t th\u00edch ki\u1ec3u h\u00e0i h\u01b0\u1edbc n\u00e0y v\u00e0 nh\u1eadn ra r\u1eb1ng nh\u1eefng ng\u01b0\u1eddi kh\u00e1c c\u0169ng v\u1eady. \u0110i\u1ec1u quan tr\u1ecdng l\u00e0 ph\u1ea3i nh\u00ecn nh\u1eadn m\u1ed9t t\u00ecnh hu\u1ed1ng \u0111en t\u1ed1i theo m\u1ed9t g\u00f3c nh\u00ecn t\u01b0\u01a1i s\u00e1ng h\u01a1n. T\u00f4i \u0111\u00e3 h\u1ecdc c\u00e1ch s\u1ed1ng c\u1ed9ng sinh v\u1edbi c\u0103n b\u1ec7nh.\u201d<\/p>\n
S\u1ef1 c\u1edfi m\u1edf c\u1ee7a Tam kh\u00f4ng ch\u1ec9 mang l\u1ea1i ti\u1ebfng c\u01b0\u1eddi cho nh\u1eefng ng\u01b0\u1eddi b\u1ecb \u1ea3nh h\u01b0\u1edfng b\u1edfi ALS c\u1ea7n \u0111\u01b0\u1ee3c gi\u00fap \u0111\u1ee1 m\u00e0 c\u00f2n t\u1ea1o ra m\u1ed9t c\u1ed9ng \u0111\u1ed3ng h\u1ed7 tr\u1ee3. C\u00f4 g\u00e1i \u0111\u00e3 t\u1ed1t nghi\u1ec7p \u0111\u1ea1i h\u1ecdc n\u00e0y \u0111\u00e3 ch\u1ee9ng minh r\u1eb1ng, ngay c\u1ea3 khi \u0111\u1ed1i m\u1eb7t v\u1edbi c\u0103n b\u1ec7nh nan y, v\u1eabn c\u00f3 ch\u1ed7 cho ni\u1ec1m vui, s\u1ef1 k\u1ebft n\u1ed1i v\u00e0 t\u1ea1o n\u00ean s\u1ef1 kh\u00e1c bi\u1ec7t.<\/p>\n
\u201cNhi\u1ec1u ng\u01b0\u1eddi li\u00ean l\u1ea1c v\u1edbi t\u00f4i qua m\u1ea1ng x\u00e3 h\u1ed9i, d\u00f9 l\u00e0 v\u00ec h\u1ecd \u0111ang tr\u1ea3i qua ho\u00e0n c\u1ea3nh t\u01b0\u01a1ng t\u1ef1 hay c\u00f3 ng\u01b0\u1eddi th\u00e2n b\u1ecb \u1ea3nh h\u01b0\u1edfng b\u1edfi ho\u00e0n c\u1ea3nh \u0111\u00f3. T\u00f4i th\u00edch n\u1ec1n t\u1ea3ng n\u00e0y v\u00ec n\u00f3 \u0111\u00e3 mang \u0111\u1ebfn cho t\u00f4i m\u1ed9t c\u1ed9ng \u0111\u1ed3ng n\u01a1i t\u00f4i c\u00f3 c\u01a1 h\u1ed9i g\u1eb7p g\u1ee1 m\u1ecdi ng\u01b0\u1eddi theo nh\u1eefng c\u00e1ch m\u00e0 t\u00f4i kh\u00f4ng bao gi\u1edd l\u00e0m \u0111\u01b0\u1ee3c,\u201d theo Tam.<\/p>\n
Quy\u1ebft \u0111\u1ecbnh s\u1eed d\u1ee5ng TikTok, m\u1ed9t n\u1ec1n t\u1ea3ng \u0111\u01b0\u1ee3c h\u01a1n h\u00e0ng tri\u1ec7u ng\u01b0\u1eddi li\u00ean t\u1ee5c s\u1eed d\u1ee5ng m\u1ed7i th\u00e1ng, nh\u01b0 m\u1ed9t ph\u01b0\u01a1ng ti\u1ec7n \u0111\u1ec3 v\u1eadn \u0111\u1ed9ng c\u1ee7a Tam xu\u1ea5t ph\u00e1t t\u1eeb mong mu\u1ed1n ti\u1ebfp c\u1eadn \u0111\u1ed1i t\u01b0\u1ee3ng kh\u00e1n gi\u1ea3 tr\u1ebb h\u01a1n t\u1eeb kh\u1eafp m\u1ecdi n\u01a1i.<\/p>\n
Tam chia s\u1ebb: \u201cNh\u1eefng ng\u01b0\u1eddi \u1edf \u0111\u1ed9 tu\u1ed5i c\u1ee7a t\u00f4i kh\u00f4ng c\u00f2n xem tin t\u1ee9c nhi\u1ec1u n\u1eefa v\u00e0 t\u00f4i bi\u1ebft h\u1ecd d\u00e0nh nhi\u1ec1u th\u1eddi gian tr\u00ean TikTok h\u01a1n. N\u1ebfu t\u00f4i t\u1ea1o ra nh\u1eefng video \u0111\u1ee7 h\u1ea5p d\u1eabn, t\u00f4i s\u1ebd s\u1ebd thu h\u00fat \u0111\u01b0\u1ee3c ng\u01b0\u1eddi xem. T\u00f4i kh\u00f4ng th\u1ec3 bi\u1ebft \u01a1n h\u01a1n v\u1ec1 nh\u1eefng g\u00ec \u1ee9ng d\u1ee5ng \u0111\u00e3 mang \u0111\u1ebfn cho t\u00f4i v\u00e0 n\u00e2ng cao nh\u1eadn th\u1ee9c v\u1ec1 c\u0103n b\u1ec7nh ALS.\u201d<\/p>\n
The post Ngh\u1ecb l\u1ef1c c\u1ee7a c\u00f4 g\u00e1i 23 tu\u1ed5i m\u1eafc b\u1ec7nh nan y hi\u1ebfm g\u1eb7p<\/a> appeared first on Saigon Nh\u1ecf<\/a>.<\/p>\n \u00a0<\/p>","protected":false},"excerpt":{"rendered":" H\u00e0nh tr\u00ecnh \u0111au l\u00f2ng c\u1ee7a m\u1ed9t c\u00f4 g\u00e1i 23 tu\u1ed5i sau khi \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc c\u0103n b\u1ec7nh nan y hi\u1ebfm g\u1eb7p \u0111\u00e3 thu h\u00fat s\u1ef1 quan t\u00e2m c\u1ee7a r\u1ea5t nhi\u1ec1u ng\u01b0\u1eddi tr\u00ean kh\u1eafp th\u1ebf gi\u1edbi. Amanda Tam, s\u1ed1ng t\u1ea1i Montreal, Canada, \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc c\u0103n b\u1ec7nh nan y hi\u1ebfm g\u1eb7p l\u00e0 b\u1ec7nh x\u01a1 …<\/p>","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"fifu_image_url":"","fifu_image_alt":"","footnotes":""},"categories":[82,72],"tags":[],"class_list":["post-52584","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-society","category-entertainment"],"_links":{"self":[{"href":"https:\/\/vietvalley.com\/en\/wp-json\/wp\/v2\/posts\/52584","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/vietvalley.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/vietvalley.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/vietvalley.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/vietvalley.com\/en\/wp-json\/wp\/v2\/comments?post=52584"}],"version-history":[{"count":0,"href":"https:\/\/vietvalley.com\/en\/wp-json\/wp\/v2\/posts\/52584\/revisions"}],"wp:attachment":[{"href":"https:\/\/vietvalley.com\/en\/wp-json\/wp\/v2\/media?parent=52584"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/vietvalley.com\/en\/wp-json\/wp\/v2\/categories?post=52584"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/vietvalley.com\/en\/wp-json\/wp\/v2\/tags?post=52584"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}